Starting Monday, May 10th through Wednesday May 12th we are asking that you Support Fibromyalgia by calling, emailing, and using social media to reach your senators and representatives. On May 11th advocates from around the country will be joining together for a virtual Hill Day. Please rally your state to gain more attention for Fibromyalgia. We can’t allow federal funding for Fibromyalgia to be decreased even more! We are overdue for an increase and an overhaul on the way our public health agencies define Fibromyalgia. Join us for a new era of advocacy for Fibromyalgia!
DOWNLOAD ADVOCACY DAY RALLY CHECKLIST
Fibromyalgia Advocacy In Action
Advocacy Rally Checklist
Research
HOUSE OF REPRESENTATIVES
Find your representative here: http://house.gov/representatives/find/
My representative is:
- Bookmark their website
- Copy the phone numbers for both the Washington, D.C. office and state office
- Follow them on social media
- Sign up for any email lists
SENATE
Find your senators here: http://www.senate.gov/senators/contact/
My senators are:
- Bookmark their website
- Copy the phone numbers for both the Washington, D.C. office and state office
- Follow them on social media
- Sign up for any email lists
ADVOCACY BY PHONE / EMAIL
The phone numbers of the offices of your senators and representatives are available on their websites. You can also call the U.S. Capitol Switchboard at (202) 224-3121 and ask for your senators’ and/or representative’s office.
Remember that telephone calls are usually taken by a staff member, not the member of Congress.
Your Personal Script:
Hello, My name is (First & Last), and I am from (City & State).
I am calling today to support Fibromyalgia advocacy with a virtual Hill Day on May 11th. We are requesting a sustained increase in funding for Fibromyalgia specific research. Please help us preserve research funding for Fibromyalgia which afflicts between 4-12 million patients like myself [or if calling on behalf of someone].
Share your story briefly. If you have specific expertise in an issue, make sure the staffer knows that.
Fibromyalgia’s cause is still unknown and there is no cure. Patients have a lower quality of life. Please urge Representative/Senator {LAST NAME} to support Fibromyalgia patients by increasing NIH research funding, not decrease it.
Thank you for your consideration of my views.
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There is so much you can do to help Support Fibromyalgia! For those of you who get some social anxiety when talking on the phone, here is a helpful blog: How to call your reps when you have social anxiety
Our Social Media Accounts
Facebook: @SupportFibromylagia
Instagram: @SupportFibromylagia
Twitter: @TeamFibro
Primary Hashtags: #FibromyalgiaAdvocacy
Additional Hashtags: #SupportFibromyalgia #Fibromyalgia
Sample Twitter Posts
We encourage you to create your own posts with your Fibromyalgia story, tag your members of Congress, tag Support Fibro, and tag other organizations so they can share. Let’s rally them to take action!
- Dear [@CongressMember], please increase funding for Fibromyalgia specific research and medical education! I’m joining @teamfibro to rally for advocates at virtual Hill Day today! #FibromyalgiaAdvocacy
- I support @teamfibro and our Fibromyalgia advocates at virtual Hill Day! Dear [@CongressMember], please increase funding for Fibromyalgia specific research and medical education! #FibromyalgiaAdvocacy
- Dear [@CongressMember], please invest in Fibromyalgia specific research and medical education! Increase our NIH funding. I support @teamfibro and our advocates for virtual Hill Day! #FibromyalgiaAdvocacy
- Dear [@CongressMember], please invest in Fibromyalgia specific research! Support an increase our NIH funding. #FibromyalgiaAdvocacy
- Dear [@CongressMember], as a Fibromyalgia patient, I’m requesting your support to increase NIH funding for Fibromyalgia specific research! #FibromyalgiaAdvocacy
Sample Facebook & Instagram Posts
We encourage you to create your own posts with your Fibromyalgia story, tag your members of Congress, tag Support Fibro, and tag other organizations so they can share. Let’s motivate them to take action!
- I am someone/I have a loved one who is affected by Fibromyalgia. That’s why I’m requesting a sustained increase in funding for Fibromyalgia specific research and medical education. I’m joining @SupportFibromyalgia to rally for my fellow Fibromyalgia advocates at virtual Hill Day today! #FibromyalgiaAdvocacy
- An increase in Fibromyalgia specific research is important to me because [Personal Reason]. That’s why I’m joining @SupportFibromyalgia to rally for Fibromyalgia advocates at virtual Hill Day! #FibromyalgiaAdvocacy
- Dear [@CongressMember], as a Fibromyalgia patient, I’m requesting your support to increase NIH funding for Fibromyalgia specific research! #FibromyalgiaAdvocacy
- Dear [@CongressMember], please invest in Fibromyalgia specific research! Support our request to increase NIH funding. I support our advocates for virtual Hill Day May 11th. #FibromyalgiaAdvocacy
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