Join our Advocacy Events in Washington, D.C.: Email us
In September 2019, ISFN launched their Fibromyalgia Advocacy Program. Patients, advocates, clinicians, and caregivers met on Capitol Hill for advocacy training and attended over 54 meetings to educate their legislative representatives about supporting critical Fibromyalgia medical research, education programs, and accessibility to alternative pain care, in order to improve the lives of patients affected by Fibromyalgia.
For 2020, ISFN will expand on initiatives by establishing meetings on Capitol Hill, NIH and public awareness campaigns for the month of May with Proclamations, regional meetings and town halls. With a full Advocacy Program for Fibromyalgia we will advance priorities in research, fibromyalgia treatments, education for physicians, and mentor the next generation of Fibromyalgia advocates.
March 11th & 12th, 2020
8am – 5pm
in Washington, D.C.
Join ISFN for in-person trainings, webinars, Proclamations, town halls and collaborations with other chronic illness advocates and organizations. Get ready to turn the month of May into one of the largest public awareness campaigns we have seen for Fibromyalgia in a long time!
We are proud to partner with the organizations from People With Empathy. We will be supporting May Awareness Campaigns for Fibromyalgia, Lupus and Mental Health.
February Dates Coming Soon
March Dates Coming Soon
May Dates Coming Soon
We sometimes forget that we do have the power to change things. As a Fibromyalgia patient we understand defeat as most of struggle to survive. A successful campaign is a joint effort that requires numerous people and tools to reach critical mass. Many people have become jaded about politics and advocacy, but participating in the process, allows your voice to be heard and it does make a difference!
Congress represents all of us. If we want more research and the cure, we will need to fight for it. The NIH needs to do more for Fibromyalgia research and we must let our representatives know! Sixty-five percent of House Chiefs of Staff would rather get a request from a constituent for a meeting than from anyone else.
Our advocacy efforts will lay down the groundwork for future years. We’ll continue to educate legislators and staff on Fibromyalgia, build relationships for future actions, and begin a new phase of training for Fibromyalgia around the country!