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Fibromyalgia Fights On
Warriors Wanted

When we bring together a group of inspired, like-minded leaders, we make the necessary changes that benefit the entire community. Investing in patient leadership and advocacy training creates positive community results. We can educate, empower, and create a supportive environment for everyone to thrive. We launched something special in 2019 and continue to bring unity among advocates and organizations in our fibromyalgia advocacy training program.

Advocacy Week
In-Person Hill Days & Virtual Meetings To Follow

2024
Washington D.C.
March 12, 13th, & 14th

Become a Fibromyalgia Delegate: Fill Out Form or Email us with additional questions.

In September 2019, the Support Fibromyalgia Network launched a new grass-roots National Fibromyalgia Advocacy program. Patients, advocates, clinicians, and caregivers met on Capitol Hill for advocacy education and attended over 54 meetings to educate their legislative representatives about supporting critical fibromyalgia medical research, education programs, and accessibility to alternative pain care.

For 2020, initiatives expanded not only with a March in-person Hill Day, but added public awareness campaigns with Proclamations, regional meetings, and town halls. As the program grew virtually, we decided to advance priorities for fibromyalgia research, treatments, education for physicians, and mentor the next generation of fibromyalgia patient leaders by forming a coalition of organizations and fibromyalgia delegation.

Advocacy In Action 2022
Fibromyalgia Delegates

We welcomed new perspectives to Fibromyalgia Advocacy in 2022, creating an entire ecosystem of change at the grass-roots community level. We were joined by other organizations, healthcare leaders, and local Fibromyalgia Delegates from all around the country to meet with Congressional leaders virtually in order to find our fibromyalgia champions and ask for a sustained investment in fibromyalgia-specific research that would ensure a proper classification, and an increase in translational treatments. A new National Fibromyalgia Delegates Training Program and National Fibromyalgia Advocacy Coalition was born.

Advocacy Coalition: Steering Committee

The steering committee provides oversight, guidance, and support for the advocacy program from start to finish. 

Melissa Talwar | California | Support Fibro
Kristal Kent | Ohio | Veteran Voices For Fibromyalgia

Veteran Affairs Committee

Kristal Kent | Ohio | VVFF
Anu D. | North Carlolina | VVFF
Al K. | Texas | VVFF
Melissa Talwar | California | SF

Public Awareness Campaigns
Communities Near You
Empower Advocates

Participate in trainings, interviews, Proclamations, town halls, and collaborations with other chronic illness advocates and organizations. We’re turning the month of May into one of the largest public awareness months!

We are proud to be working with Veteran Voices For Fibromyalgia, Men With Fibromyalgia, My Several Worlds, The Fibromyalgia Pain Chronicles, and Lupus Spoons for May Awareness Campaigns that support Fibromyalgia, Lupus and Mental Health.

Upcoming 2024 Events
Advocacy Rally

March 12th

Advocacy Rally

May 8

Advocacy Training

May TBD

Advocacy Matters

We sometimes forget that we do have the power to change things. As a Fibromyalgia patient we may feel defeated as most of us struggle to survive. A successful campaign is a joint effort that requires numerous people and tools to reach critical mass. By participating in the process, it allows your voice to be heard and it does make a difference!

Congress represents all of us. If we want more research and the cure, we will need to fight for it. The NIH needs to do more for Fibromyalgia research and we must let our representatives know! Sixty-five percent of House Chiefs of Staff would rather get a request from a constituent for a meeting than from anyone else.

Our advocacy efforts will lay down the groundwork for future years. We’ll continue to educate legislators and staff on Fibromyalgia, build relationships for future actions, and begin a new phase of training for Fibromyalgia around the country!

#SupportFibro

Advocacy Trainings & Inspiration

Fibromyalgia Advocacy in 2024

Join Us in Amplifying Fibromyalgia Advocacy in 2024!  As we step into a new year,…

Fibromyalgia Senator Rally

On May 11th, 2022, Fibromyalgia Delegates successfully met with Congressional leaders on the Hill to…

Rally for Fibromyalgia Advocacy Day 2022!

  Starting Monday, May 9th through Thursday, May 12th we are asking that you Support…

Advocacy Day May 11th 2021 – Rally Your State!

Starting Monday, May 10th through Wednesday May 12th we are asking that you Support Fibromyalgia…

Candace Lerman, Esq. Interview | Advocacy In Action

Today's special guest is Candace Lerman, Esq.! Candace is an attorney, consultant, and author of…

Brian Tally Interview | Advocacy In Action

Brian Tally joins us for a special Fibromyalgia Advocacy In Action presentation! He closed a…

Connect on Social Media!

Follow our adventures, get live updates and share your own photos. Tag your content with #supportfibro!

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