When we bring together a group of inspired, like-minded leaders, we can make the necessary changes that benefit the entire community. Investing in patient leadership and advocacy training creates positive community results. We can inspire, empower, and create a supportive environment for everyone to thrive. From 2019 to 2022, we are bringing unity among advocates and organizations.
May 11 2022
Registration Is Now Closed
In September 2019, a new program was launched for Fibromyalgia Advocacy and patients leaders. Patients, advocates, clinicians, and caregivers met on Capitol Hill for advocacy education and then attended over 54 meetings to educate their legislative representatives about supporting critical Fibromyalgia medical research, education programs, and accessibility to alternative pain care.
For 2020, initiatives expanded not only with a March in-person Hill Day, but added public awareness campaigns with Proclamations, regional meetings, and town halls. With a a growing program, we will advance priorities in research, Fibromyalgia treatments, education for physicians, and mentor the next generation of Fibromyalgia patient leaders.
For 2022, we bring new perspectives to the Fibromyalgia community creating an entire ecosystem of change at the grass-roots community level. We are joined by other organizations, advocates, and healthcare leaders to address issues affecting the entire Fibromyalgia community. Local Fibromyalgia Delegates from all around the country will take to the Hill to meet with Congressional leaders to rally some champions, and ask for a sustained investment in Fibromyalgia-specific research that will ensure a proper classification, and an increase in translational treatments.
On May 11th, 2022, Fibromyalgia Delegates successfully met with Congressional leaders on the Hill to…
Starting Monday, May 9th through Thursday, May 12th we are asking that you Support…
Starting Monday, May 10th through Wednesday May 12th we are asking that you Support Fibromyalgia…
Today's special guest is Candace Lerman, Esq.! Candace is an attorney, consultant, and author of…
Brian Tally joins us for a special Fibromyalgia Advocacy In Action presentation! He closed a…
Participate in trainings, interviews, Proclamations, town halls, and collaborations with other chronic illness advocates and organizations. We’re turning the month of May into one of the largest public awareness months!
We are proud to be working with Looms for Lupus, Men With Fibromyalgia, My Several Worlds, Heart, Faith & Strength, Fibromyalgia Pain Chronicles, Veteran Voices For Fibromyalgia, and Lupus Spoons for May Awareness Campaigns that support Fibromyalgia, Lupus and Mental Health.
May 5th – 7th
May 9th @ 12pm PT
We sometimes forget that we do have the power to change things. As a Fibromyalgia patient we may feel defeated as most of us struggle to survive. A successful campaign is a joint effort that requires numerous people and tools to reach critical mass. By participating in the process, it allows your voice to be heard and it does make a difference!
Congress represents all of us. If we want more research and the cure, we will need to fight for it. The NIH needs to do more for Fibromyalgia research and we must let our representatives know! Sixty-five percent of House Chiefs of Staff would rather get a request from a constituent for a meeting than from anyone else.
Our advocacy efforts will lay down the groundwork for future years. We’ll continue to educate legislators and staff on Fibromyalgia, build relationships for future actions, and begin a new phase of training for Fibromyalgia around the country!
Follow our adventures, get live updates and share your own photos. Tag your content with #supportfibro!