It's a tremendous honor to be awarded the Hero of Hope award for the Patient Advocacy Category. Thank you the team at the International Pain Foundation for creating such an amazing community and allowing me to be a part of…
Today's special guest is Candace Lerman, Esq.! Candace is an attorney, consultant, and author of the rare disease blog, RareCandace.com We can't wait to learn from all her wisdom! Candace researched and repurposed a drug to put her rare blood…
Brian Tally joins us for a special Fibromyalgia Advocacy In Action presentation! He closed a 74-year-old VA legal loophole and changed the law to protect all Veterans. His passion and determination for change is unmatched. Get ready to be inspired!…
To launch Fibromyalgia Awareness Month we're giving away our Support Fibromyalgia Coloring Book! Print it out, color, and share with us on social media. Our Fibromyalgia coloring book includes our various programs. You can spend time learning about the organization,…
We were joined this week with Juana and Estela Mata from Looms For Lupus. They have spent over 10 years advocating for the Lupus and chronic illness community. Part of their advocacy has including proclamations in their local areas. They…
We're excited to be partnering with Brandi from Being Fibro Mom in support of the Shine For Fibromyalgia (#ShineForFibro) campaign. We're shining a light for our entire Fibromyalgia community to let everyone know they are not in this fight alone,…
Starting Monday, March 9th through Friday, March 13th we are asking that you Support Fibromyalgia by calling, emailing, and using social media to reach your senators and representatives. We can't allow federal funding for Fibromyalgia to be decreased even more…
Join us on Feb. 23rd for a free online webinar! Registration is required and limited tickets are available. Register here: http://bit.ly/3960Nri How to Navigate Fibromyalgia With Your Partner is the topic of this webinar. We're start out with a presentation…
GivingTuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world on December 3, 2019, and every day. It was created in 2012 as a simple idea: a day that encourages…
On September 19, 2019, thirty Fibromyalgia advocates from the around the country descended on Capitol Hill to speak with our representatives and senators in a total of fifty-four meetings. We discussed an increase in Fibromyalgia specific research, medical education and…