Today’s special guest is Candace Lerman, Esq.! Candace is an attorney, consultant, and author of the rare disease blog, RareCandace.com
We can’t wait to learn from all her wisdom!
Candace researched and repurposed a drug to put her rare blood disorder into remission twice! Inspired by her struggle to access the right treatment for herself, she launched the ITP Patient Driven Research Initiative. She works closely with members of Congress on federal healthcare policies, and can often be found on Capitol Hill. Candace also advises numerous disease specific nonprofits on research strategies, patient engagement, and building relationships with pharmaceutical companies.
Learn more here: http://rarecandace.com/
We hope you enjoy this next video as we ramp up for Fibromyalgia Advocacy Day on May 11th! Thanks to The Fibromyalgia Pain Chronicles, Veteran Voices For Fibromyalgia, Looms For Lupus and the Support Fibromyalgia Network team for making this all happen! 💜