On May 11th, 2022, Fibromyalgia Delegates successfully met with Congressional leaders on the Hill to share the impact that fibromyalgia had on their everyday lives. Our ask, an appropriations request to open up funding at the National Institute of Neurological…
Starting Monday, May 9th through Thursday, May 12th we are asking that you Support Fibromyalgia at Capitol Hill by calling, emailing, and using social media to reach your senators and representatives. On May 11th advocates from around the country…
Starting Monday, May 10th through Wednesday May 12th we are asking that you Support Fibromyalgia by calling, emailing, and using social media to reach your senators and representatives. On May 11th advocates from around the country will be joining together…
Today's special guest is Candace Lerman, Esq.! Candace is an attorney, consultant, and author of the rare disease blog, RareCandace.com We can't wait to learn from all her wisdom! Candace researched and repurposed a drug to put her rare blood…
Brian Tally joins us for a special Fibromyalgia Advocacy In Action presentation! He closed a 74-year-old VA legal loophole and changed the law to protect all Veterans. His passion and determination for change is unmatched. Get ready to be inspired!…
We were joined this week with Juana and Estela Mata from Looms For Lupus. They have spent over 10 years advocating for the Lupus and chronic illness community. Part of their advocacy has including proclamations in their local areas. They…
Starting Monday, March 9th through Friday, March 13th we are asking that you Support Fibromyalgia by calling, emailing, and using social media to reach your senators and representatives. We can't allow federal funding for Fibromyalgia to be decreased even more…
On September 19, 2019, thirty Fibromyalgia advocates from the around the country descended on Capitol Hill to speak with our representatives and senators in a total of fifty-four meetings. We discussed an increase in Fibromyalgia specific research, medical education and…
Starting Wednesday (Sept. 18th) and Thursday (Sept. 19th) we are asking that you Support Fibromyalgia by calling, emailing and using social media to reach your senators and representatives. We can't let funding for Fibromyalgia get cut for FY2020, in fact…