How do we scale giving and outreach for fibromyalgia patients while living with fibromyalgia and being grassroots advocates and organizations?
The Fibromyalgia Advocates Give Back program is comprised of fibromyalgia and chronic illness advocates, caregivers, nonprofit, and business organizations from around the country. Together we are working to build one of the largest community giving and outreach programs for the fibromyalgia community. This project first launched in 2020 for a pandemic giving program, but after many discussions, we decided there also was a need to expand resources during holiday giving, natural disasters, support group resources, food drives, back to school days, and more as the needs develop.
Please take a look and support all the fibromyalgia advocates and organizations involved. This is a grassroots movement and an organized effort bringing necessary changes at local, regional, and national levels. We are already sending out groceries, preparing meals, hosting food drives, sending care packages all around the United States. More updates coming soon!
It’s giving season and we want patients and their families to know they are not alone. This holiday giving campaign was launched in coordination with the advocates and organizations listed. We love all the excitement as more people are getting involved.
Fibromyalgia patients and families have been nominated to receive a care package, grocery delivery, or other special gift. The advocates and organizations coordinate nominees, purchase, and organize supplies.
The Fibromyalgia Advocates Give Back program is looking to grow. Patient advocates, caregivers, nonprofit organizations, and businesses can get involved in this project as your time and energy permits. Ideas welcomed. We ask that you be open-minded to the inclusivity that this program creates and understand it will take more than one individual or organization to move the giant fibromyalgia mountain forward. Working together we will transform the community and how we provide services. Fill out the interest form and we’ll be in touch. We will be looking for regional team leaders and team organizations as this grows.
Scaled impact requires a program with a strong theory of change. It requires knowledge of community service, public policy, behavioral economics, technology, and people who believe in service above self recognition. We will be sharing our success via open resources, success stories, and advocating for productive fibromyalgia policies. It will take courage, but the upside is we will see the fibromyalgia community change for the better.
Scaling strategy includes: 1. Service Expansion 2. Replication 3. Advocacy
Follow our adventures, get live updates and share your own photos. Tag your content with #supportfibro!