Fibromyalgia is defined slightly different depending on which website you pull up on the internet. The American College of Rheumatology defines Fibromyalgia as a common neurologic health problem. It’s a chronic (long-term) illness characterized by widespread pain, fatigue, unrefreshed sleep, memory problems (brain fog), and tenderness (sensitivity to touch). Many Fibromyalgia patients are also diagnosed with Irritable Bowel Syndrome and patients are at higher risk of having Fibromyalgia if you have a rheumatic disease like osteoarthritis, lupus, rheumatoid arthritis, or ankylosing spondylitis.

Other commonly found comorbid conditions include depression, anxiety, Migraines, overactive bladder, pelvic pain and Temporomandibular disorder (TMJ).

The cause of Fibromyalgia is still unclear. It can affect women and men of all ages.

Fibromyalgia has been described as Central Pain Amplification disorder, meaning the volume of pain sensation in the brain is turned up too high. Central sensitization clearly occurs in Fibromyalgia, but it doesn’t fully explain it. Recent research show neuroinflammation by the means of brain glial activation taking place in Fibromyalgia.

Stronger Together

There is no easy way for a family to prepare for the diagnosis of a chronic illness. Families go through many emotions and building resilience together is very important. We hope to cut through the Fibromyalgia guesswork by establishing programs built to service families directly with resources and expert leadership.

Program Overview

Education

Provide useful content created by Fibromyalgia family members.

Support

Host workshops and support group nights geared towards the entire family.

Advocacy

Empower the family to be involved with advocacy training.

Events & Tools

Resources, webinar and workshop events

Fibromyalgia Conference 2022

The Fibromyalgia Community Conference All-Virtual via Hopin November 4th & 5th Register Here    

Leadership Team

Brandi Clevinger

Brandi is a Navy veteran living in South Carolina with her four sweet children. She is a fibromyalgia thriver, Certified Health Coach, creator of Being Fibro Mom, and contributor to the Fibromyalgia Magazine. Brandi enjoys reading, writing, and creating smoothie recipes.

Suzanne Kopecki

Suzanne is a Certified Health Coach in the bay area, wife, mother of three beautiful children, a psychology student working towards her BA, and creator of FibroMomBlog.

Melissa Swanson

Melissa is a Certified Fibromyalgia Advisor, award winning author of Ravyn’s Doll: How to Explain Fibromyalgia to Your Child, creator of Fibro Warriors Living Life, wife and mother.

Bridging Communication

The Family & Fibromyalgia program will foster connections between Fibromyalgia families, local communities, schools, and medical experts.

Get Involved

Fill out the form to get involved with this program.

  • Patient Advisors
  • Group Coaching
  • Consultants
  • Webinars/Workshops
  • Content Creator
  • School Advocates
  • Fundraising
Family & Fibromyalgia
If you are interested in being involved with the Family Program. Please send us a message here.
  • If you have another reason to contact the Family Program, please send us a brief message.
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